Thursday, January 15, 2009
Golf Tournament update
The fundraising for the golf tournament is going so well. We have 5 holes sponsored and I think we will have around 10 teams playing! The raffle items we have collected have been so generous and we are still receiving more. The ticket sales for that are going well too! I really think this event is going to be more successful than we originally thought!
Angelina got her Leg Braces!!
YEAH! Angelina got her leg braces! We had to go back though because they will have to be remade. They are just a bit too big and that won't work for what she needs! She should have them back in a little over a week or so.
She has been able to stand leaning on the ottoman playing with a toy UNASSISTED!! She is doing so well and we will be much more happy to have the new braces.
Thursday, January 1, 2009
Team Angelina Golf Tournament
Okay so we have our www.TeamAngelina.org website live and are actively promoting the Golf Tournament scheduled for January 28, 2009! I am really excited about the buzz it is causing and the items donated already! We have even received cash donations to be entered into the drawings for dinner at home for 4, house cleaning and golf lessons. Those were really unexpected and made my heart smile that even in our economic recession people really do care about helping our little girl be the best Angelina she can be!
We are putting all the proceeds to use to pay for additional physical therapy, speech therapy and occupational therapy. Angelina is also going to receive Hyperbaric Oxygen Therapy as well. That won't happen for a couple of months because Angelina has 2 impending surgeries in her future. Her optometrist has recommended we do the surgery to straighten up her right eye so she doesn't lose sight completely in it. Also, her GI doc says if she continues to vomit as frequently as she does we will be looking at doing a fundoplacation surgery to minimize or eliminate the vomiting so she doesn't have further damage and erosion to her esophagus.
She is doing so well in physical therapy though. The last week she has really tolerated being on her belly without having a complete fit. She tries to get to toys that are on the floor, pushing and pulling with all her might. I swear one of these days I will remember to video it so you can watch it here. I have such pregnancy brain going on right now! I am literally the chicken with it's head cut off lately! Anyway, today she played with a new toy while on her belly then I helped her get to a crawl position and she stayed that way for a little while on her own. Once she got tired with that we pushed up to sitting on her knees and she played with a toy on my lap mostly balancing herself. I was so proud of her. Even Brady kept saying "Sissy, Sissy" like hey look at her, look what she is doing! He is such a good brother - even though he does run over her like a speed bump in the road!That is all for now.....
We are putting all the proceeds to use to pay for additional physical therapy, speech therapy and occupational therapy. Angelina is also going to receive Hyperbaric Oxygen Therapy as well. That won't happen for a couple of months because Angelina has 2 impending surgeries in her future. Her optometrist has recommended we do the surgery to straighten up her right eye so she doesn't lose sight completely in it. Also, her GI doc says if she continues to vomit as frequently as she does we will be looking at doing a fundoplacation surgery to minimize or eliminate the vomiting so she doesn't have further damage and erosion to her esophagus.
She is doing so well in physical therapy though. The last week she has really tolerated being on her belly without having a complete fit. She tries to get to toys that are on the floor, pushing and pulling with all her might. I swear one of these days I will remember to video it so you can watch it here. I have such pregnancy brain going on right now! I am literally the chicken with it's head cut off lately! Anyway, today she played with a new toy while on her belly then I helped her get to a crawl position and she stayed that way for a little while on her own. Once she got tired with that we pushed up to sitting on her knees and she played with a toy on my lap mostly balancing herself. I was so proud of her. Even Brady kept saying "Sissy, Sissy" like hey look at her, look what she is doing! He is such a good brother - even though he does run over her like a speed bump in the road!That is all for now.....
Happy New Year!
We had a great New Year's eve beginning the day with Physical Therapy at Cook's. She had such a great session! She was sitting up well and trying to get the toys while on her belly. It was really great to see her not have a fit on her tummy! She chair sat well keeping both feet on the floor, at least for a little while, and while sitting on her knees she brought her herself up to directly on her knees all by herself! That as very encouraging.
She has been saying "dayee" for daddy every now and again. I guess she hears Brady saying it like that and is trying to do the same! I haven't heard the official report on her EEG yet, but I will be talking to her neuro nurse, Sheila, on Monday to get the scoop on that.
She still has a lot of mucous going on and I am hopeful the Mucinex will work to get rid of that. Once that is done I can increase the medicine that helps with her tone.
That is all for now!
She has been saying "dayee" for daddy every now and again. I guess she hears Brady saying it like that and is trying to do the same! I haven't heard the official report on her EEG yet, but I will be talking to her neuro nurse, Sheila, on Monday to get the scoop on that.
She still has a lot of mucous going on and I am hopeful the Mucinex will work to get rid of that. Once that is done I can increase the medicine that helps with her tone.
That is all for now!
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