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Saturday, November 14, 2009

Angelina's HBOT Update...It's Over!

The kids sacked out on the Big Bed!

Brady playing room receptionist


It's FINALLY over! I knew it was going to be trying but geesh! The kids are going to be glad to wake up and not have to get ready to go anywhere! We are all ready to get things back to normal and now that Angelina's treatment is over life can begin to settle down again.
These are the techs that made our lives easier while we were at their office. Edith and Trey were great! They were so accommodating and easy going. There's a family room at this office and lucky for us there usually wasn't anyone else waiting around while we were there so we had it all to ourselves. Instead of hanging out in the car I set Angelina up on the futon they had so she could nap while she was hooked up to her food. I fed Cirstyn in there while her treatment was in progress without being in the way or making anyone feel uncomfortable. Edith has a 2 month old little girl and would bring her on the weekends - she's so cute! Anyway, their hospitality made the last 3.5 weeks better than I initially thought they would be.I think she is responding well to this therapy already. She has been listening to command phrases and actually responding to them. We were sitting in the floor and I was helping her to stay upright. I told her a few times to put her hands back down on the floor and she wouldn't' fall over - and she did it! She sat up for about 5 minutes playing! That was pretty cool. Also, yesterday she was babbling on and she sat straight up and clearly said MAMA DADA. She has been saying mama and dada for a while now, but this was different. She usually says mamamamama or dadadadada but this was very clear. Larry and I looked at each other as if to say "did she really just say that??"Now it's back to the regular schedule and back to therapy. I hope her therapists see some differences. If nothing else, I think they will think she's grown since they last saw her 4 weeks ago! She was scheduled to get BOTOX again last Thursday but we decided to hold off for a couple of months to see if the HBOT helps and the Craniosacral Manipulation Therapy as well.Larry and I took Angelina to meet with the EMISD Diagnostician to talk about starting her in the special education program just after her third birthday. It was pretty much an informational meeting. They got all the medical info on Angelina we could provide, explained the program and we made additional appointments to meet with their therapists. Basically she would go for 3 hours per day during the week, more than likely in the morning from 8-11 am. Therapy provided would be administered from an educational standpoint rather than from a medical standpoint and the variation will be good for her. It will be difficult for Larry and I to leave her at a place where we don't know the caregiver personally but they did say we could stay as long as we needed to be comfortable. Maybe I should plant a nanny-cam on her! :)
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