Today is a better day!

Angelina was having a few bad days this last week and we made a 5:30 a.m. call to the on-call surgeon because we were quite concerned about this brownish sludge coming out of her g-button. I have to admit it freaked me out pretty good because her regular surgeon told us to be on the look out for greenish or dark brownish stuff coming out of her belly. Well, the on-call surgeon was a complete prick and pretty much told us we shouldn't have disturbed him that early in the morning - umm HELLO we don't hold medical degrees or a surgical licenses and hence didn't not know that she wasn't in any danger! I was so flippin' mad I couldn't even go back to sleep once I got Angelina back in bed. Doesn't that jerk know how special she is?? He should consider himself lucky he got a call concerning her! He needs to get a clue!

Since then however her belly has been better. She had a day or so after that where she was wretching alot, so that was what was causing the brownish tint to her stomach product. She may have loosened a stitch and it seeped blood. The last few days she has been much better though. She has been able to better control the wretching urge to try to vomit. Like today she probably did it only a few times rather than at least once an hour all day long!

Good news though - she hasn't thrown up in almost 3 weeks! I took her to see her GI doc today and they have advised us not to refill her Prevacid since she can't reflux into her esophagus. We just have to be mindful of her to tell if she is having stomach pain from acid. She hasn't had any Prevacid for like 3 or 4 days now and has been okay. One less medicine to take yeah!

Angelina will start back with all her therapies this week as well! I am hopeful that speech therapy will pick up well and she will be able to handle a bit more. We are going to try to work in another day for therapy during the week as well. Next, I have to make an appointment with a doctor we have been referred to for Hyperbaric Oxygen Therapy. That will be the first thing we do with the funds that were raised by the golf tournament. I am excited to get that underway!

Oh, her eyes are looking so good. They don't wander to the outside at all now. They will go in just a little, but her optomologist said that would happen for a bit until the muscles adjust. She is so pretty! Her eyes are just looking so good! It's like she is able to focus better on the things she is paying attention to.