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Friday, April 3, 2009

Angelina has had her first spastic seizure :(

Larry and I knew it would eventually happen but not in the middle of the night. This morning around 2:30 a.m. I went to check on Angelina because she was making weird noises and found her in the middle of a full on spastic seizure. I couldn't see her very well at first because I was half asleep and her night light isn't very bright. Her arms were flexed out stiff as well as her legs, she was breathing erratically and making a weird smacking sound with her mouth. Her eyes were fluttering uncontrollably. I shouted at Larry through the monitor to get up quick - she was seizing! He ran into her room and I asked him to see what time it was so we could tell how long it lasted and to get the phone. I rolled her onto her side and swiped her mouth just in case there was anything in there. He called the on-call neurologist and explained what was happening. Once she stopped twitching she had her eyes closed but still breathing erratically. She had her jaws clenched shut and I was afraid she would bite her tongue or cheek so I pryed her mouth open at the back of her jaw. This made her cry - FINALLY. Larry was still on the phone with the doc when she started crying so this was a big sign of relief. He advised us not to take her to Cook Children's just yet because she would probably be acting fine by that time and we would just sit and wait, but if it happened again to take her in and call him back.Angelina contracted the stomach bug Brady had and yesterday her pediatrician's office advised us to give her Kaopectate and Imodium. She had diarrhea pretty badly but was keeping down the Pedialyte - not that she had a choice. Apparently, when a child has something like this and has a fundo like she does it's not a good idea to give those kinds of medicines because the child can't throw up. So what happened was that her gut just clogged up and the bacteria festered. When a person is seizure prone sickness makes that person more susceptible to seizures. Things I did not know! Anyway, she came to bed with us and about an hour later Brady joined us. So we four slept (sort of) sandwiched on my bed. Poor Larry had to get up at 5:45 am to go to work and needless to say neither of us really got any sleep after that. She is acting okay today and I haven't seen any other seizure activity as of yet. Her neuro nurse says that it very well could happen again maybe even a couple of times before she is well. She called in a prescription for Angelina that will stop the seizures if they happen again. This is a relief to have on hand. I just hope we don't have to use it!

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