Wednesday, April 29, 2009
Angelina's progress post surgery and sickness!
Now that my little lady is feeling so much better and enjoying vomit-free life she has been doing so well with all her therapy sessions. Today we had all three starting with Occupational Therapy (fine motor movements). She did very well with disassociating her top from her bottom and really getting good rotation to reach her toys. She is really trying to pick things up with her finger and thumb now. I told her therapist, Ms. Mary, that yesterday we were playing and I told her to give me five and she actually found my hand and gave me a few fives! She did this with both hands separately. It was great! Physical therapy is going good as well. She still doesn't' like to be on her tummy, but sometimes life doesn't care what we like just what we need. She is trying to scoot across the floor though as long as we can keep her from flipping back over on to her back. She has been working on staying upright on her legs and can really control the top portion of her body if we hold on to her waist. She even takes steps to get to toys. All of this is with assistance, but she couldn't do this 6 months ago so this is quite a big change! Speech therapy is good too! She can handle bigger bites with little or no gagging. But even if she does gag she is able to recover without assistance or distraction. That is HUGE!! We are trying to get in 2 "food" session per day at home. She really likes mac-n-cheese and also Alfredo sauce. Apparently she is a savory girl and not a sweet girl! I am trying to get her an appointment with the ortho (leg braces) therapist either through her usual therapy sessions or through her neurologist's office. We need to have her braces looked at and adjusted. She can still wiggle her heel out of where it is supposed to stay and that pretty much makes the braces ineffective and somewhat painful to be in. It's causing a rubbed place on her left big toe that is beginning to be an issue. Hopefully we can get this resolves sooner rather than later. No news on the new chair she is supposed to be getting. That will probably be here mid-summer. Oh the joys of bureaucratic insurance!!! We are also working on adjusting her stroller to be more accommodating so that she doesn't slide down and can keep her hips and pelvis posture correctly. That is a work in progress though. Her PT is trying to keep her out of a wheelchair for as long as possible because you can only get one every 5 years and that leaves little growing room. We'll see how it goes.I think that is all for now. Angelina is doing really great and we couldn't be happier or more proud of her!
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